Monitoring: KANS Project

Approximately thirty percent of people with epilepsy have seizures that cannot be adequately controlled with medication. Especially when large seizures occur at night, they carry significant risks. There are medical devices available that can detect seizures, allowing caregivers or loved ones to provide assistance when needed. However, the use of these devices is still limited. Additionally, it has not yet been conclusively proven that seizure detection leads to better quality of life or lower care and societal costs.

Further research is needed to determine whether the use of seizure detection tools is effective. In this study, we will follow patients living in long-term care facilities who experience nocturnal seizures, first without and then with a seizure detection device. The devices in question are NightWatch or Epi-Care Free. We will investigate the impact of seizure detection on, among other things, the number of appropriate and missed visits by care staff after a seizure, quality of life, and care and societal costs.

The KANS study started on February 1, 2024, and will run until early 2028. The research is funded by ZonMw: 10310012210006. For more information, you can contact Eefke Lemmen via email: eefke.lemmen@maastrichtuniversity.nl.